tag:blogger.com,1999:blog-4738062031052371885.comments2024-03-17T10:07:53.205-07:00The Well-Rounded MamaWell-Rounded Mamahttp://www.blogger.com/profile/04129621631406155340noreply@blogger.comBlogger2854125tag:blogger.com,1999:blog-4738062031052371885.post-67248941924073552042022-10-20T21:40:50.931-07:002022-10-20T21:40:50.931-07:00I was diagnosed with Mantle Cell cancer in 2018. I...I was diagnosed with Mantle Cell cancer in 2018. In six weeks on Rituxin-Benemussin I gained 47 pounds. I slept all the time. The cancer is of the lymph system. In December of 2018 -I suddenly grew a large fat tumor on each side of my buttock near the waist.Surgery on one side showed no cancer but the doctor diagnosed Dercums. It was understood I was basically allergic to Rituxin . But now I knew why I developed a ski jump rear and two very large upper arms at 65 years! My right leg became larger. <br />That became lymphadema. I had wrapped my legs from 18 years old on during pregnancies. I was investigated for kidney problems with multiple surgerys. I then started fluid gains each month at midcycle. My abdomen filled with fluid after hiking.<br />After my fourth child-nothing would remove the extra 14 pounds .My fifth child I dieted and did not gain a pound Unfortunately the doctor created a mess and a hysterectomy followed and four years of tissue removal and many bowel obstructions. At times on NG tubes for over a month and never one pound lost! hashimotos started. then a sudden 30 lbs <br />in less than 3 weeks. Severe diets and aggressive exercise.Then 40 lbs! and Lymes ! Now I had 7 surgeries for spinal stenosis of cervical and lumbar that I was born with plus radiation of thoracic spine. Many fat tumors in spinal areas that added to pain. Another 40 lbs but this I fight up and down for 30 years. I swam and exercised daily in the pool, rode a bike walked many miles.The emmotional pain of holding ones head high and surviving the cruel taunts and remarks and staying <br />upbeat and kind in heart and mind helped. I kept many journals of my meals for years. The pain in my spine, legs is <br />extreme. I have 5 auto immune conditions now. The lymph nodes are cancer free this year still ! I must keep my legs up so as to avoid debilitating pain.<br /> Information like this has given me hope and justice. <br />I love listening to Kathy Bates bring light to the lymphadema part . <br />At 74-I hope to bring some of this in control with procedures that remove and restore.<br />Thank you!!!!<br />Oklahoma has only one doctor supposedly have ing insight but since his report said "obese due to excessive calorie intake" without speaking to me than -obviously his understanding is not acceptable.<br /><br />In 2021 I had a knee restoration which blew up my right leg and has brought on horrible leg problems.C.Moennoreply@blogger.comtag:blogger.com,1999:blog-4738062031052371885.post-79723766188208270312019-09-17T05:44:49.151-07:002019-09-17T05:44:49.151-07:00I'm so sorry to hear this. I started reading t...I'm so sorry to hear this. I started reading this blog almost 10 years ago & found it a very valuable resource as I was having my own kids. Sending love and light to you, Richard & kids. crystal_bhttps://www.blogger.com/profile/03492385706718880020noreply@blogger.comtag:blogger.com,1999:blog-4738062031052371885.post-74858652972667187732019-08-25T03:05:46.988-07:002019-08-25T03:05:46.988-07:00Excellent article. Very interesting to read. I rea...Excellent article. Very interesting to read. I really love to read such a nice article. Thanks! keep rocking.<br /><a href="http://kidstuts.com/unique-backpacks-for-boys/" rel="nofollow"> Backpacks for kids </a>Kids Tutshttp://kidstuts.comnoreply@blogger.comtag:blogger.com,1999:blog-4738062031052371885.post-33308931707205166022019-07-06T23:20:47.307-07:002019-07-06T23:20:47.307-07:00I just checked just now to see if there were any n...I just checked just now to see if there were any new posts, only to find that she is no longer with us. I found out about Lipedema here first, 4 yrs ago, and spent the next 2 yrs researching doctors and treatments, and finally got my first lipo last fall. If this blog hadn't existed, I would never have found out about it, and I would be truly disabled by now.Michnoreply@blogger.comtag:blogger.com,1999:blog-4738062031052371885.post-81039745326597586312019-06-20T20:27:05.285-07:002019-06-20T20:27:05.285-07:00I am so very, very sorry. Her work has been a sign...I am so very, very sorry. Her work has been a significant resource that I've shared with people countless times over the years. I'm grateful. - Marilyn Wann, FAT!SO?Unknownhttps://www.blogger.com/profile/13034609527112572552noreply@blogger.comtag:blogger.com,1999:blog-4738062031052371885.post-65578194363593493772019-06-11T22:57:29.890-07:002019-06-11T22:57:29.890-07:00Dear Richard, I've followed Pamela's work ...Dear Richard, I've followed Pamela's work for - can it be? - almost 20 years. While I didn't know her personally, her intellect, kindness, resourcefulness, and love of life shone through her writing. I was terribly sad to hear of her death; I send you and the rest of her family my deepest condolences. May her memory be for a blessing.Deborahhttp://mamasgotaplan.comnoreply@blogger.comtag:blogger.com,1999:blog-4738062031052371885.post-62739502086035533132019-06-11T02:47:02.454-07:002019-06-11T02:47:02.454-07:00I am so sorry for your loss. She touched so many p...I am so sorry for your loss. She touched so many people's lives and was an inspiration to us all.Angela Meadowshttps://www.blogger.com/profile/00695259679887125737noreply@blogger.comtag:blogger.com,1999:blog-4738062031052371885.post-70609015194963553312019-06-01T00:43:53.813-07:002019-06-01T00:43:53.813-07:00Hi, thank you for sharing this great info. Was jus...Hi, thank you for sharing this great info. Was just browsing through the net in my office and happened upon your blog. It is really very well written and quit comprehensive in explaining with a very simple language. <br /><a href="http://www.pain-institute.com/cervical-dystonia/" title="dystonia pain relief" rel="nofollow">dystonia pain relief</a><br />Alexhttps://www.blogger.com/profile/05881470711322375468noreply@blogger.comtag:blogger.com,1999:blog-4738062031052371885.post-61428782555177616592019-05-31T17:34:33.561-07:002019-05-31T17:34:33.561-07:00I'm so sorry Mr Vireday������ This blog has he...I'm so sorry Mr Vireday������ This blog has helped so many people��<br />Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4738062031052371885.post-81093419742005337112019-05-31T11:15:51.464-07:002019-05-31T11:15:51.464-07:00Richard and family, I am so very sad to hear of yo...Richard and family, I am so very sad to hear of your loss. <br /><br /> Kmom was an excellent researcher and writer and, in having followed this blog of hers for a number of years, I learned so much from her. Thank you for keeping this blog online going forwards.<br /><br />Thinking of you at this difficult time.NessieMonsterhttps://www.blogger.com/profile/08391527413257229674noreply@blogger.comtag:blogger.com,1999:blog-4738062031052371885.post-20953680327203755522019-05-30T14:46:39.584-07:002019-05-30T14:46:39.584-07:00I'm so sad to hear of Pamela's passing. I ...I'm so sad to hear of Pamela's passing. I was lucky enough to meet her a few years ago in Portland. I'm grateful for her work! I'll be holding her family in my thoughts.Jen McLellanhttps://plussizebirth.com/noreply@blogger.comtag:blogger.com,1999:blog-4738062031052371885.post-25411734352182707422019-05-29T19:31:10.557-07:002019-05-29T19:31:10.557-07:00I'm so sorry to hear of her passing. Kmom was ...I'm so sorry to hear of her passing. Kmom was such an encouragement to me when I was planning my first HBAC with my twins almost 14 years ago. She was so knowledgeable, compassionate, and a wonderful source of support. She will be greatly missed by so many.heather@it'stwinsanityhttps://www.blogger.com/profile/04708748834406020093noreply@blogger.comtag:blogger.com,1999:blog-4738062031052371885.post-56265433474485158292019-05-29T10:10:21.118-07:002019-05-29T10:10:21.118-07:00I am so sorry. I enjoyed reading her blog and it w...I am so sorry. I enjoyed reading her blog and it was helpful. May her memory become a blessing to you all.aliphilhttps://www.blogger.com/profile/04953460417699823826noreply@blogger.comtag:blogger.com,1999:blog-4738062031052371885.post-80690979487982850652019-05-29T07:49:23.275-07:002019-05-29T07:49:23.275-07:00Richard, I give you and your family all my condole...Richard, I give you and your family all my condolences on the loss of Pamela. She made such contributions to the world through this blog! I learned that I have lipedema because of her. I've referred pregnant friends to this blog, where they found help and solace. I hope she knew how much good she did through her research and writing. She will be missed. OptimistiCynic:https://www.blogger.com/profile/06885147187793372617noreply@blogger.comtag:blogger.com,1999:blog-4738062031052371885.post-80283349925590795032019-05-22T17:56:03.015-07:002019-05-22T17:56:03.015-07:00Your back warming in one of the treatments, sounds...Your back warming in one of the treatments, sounds like my experience after the pre-op the day before my liposuction for lipedema. It was only done on the legs, but was supposed to loosen the tissues and get water out. About an hour later and till the next morning, I was freakin' hot, sweating buckets. My mom said she was freezing.Michenoreply@blogger.comtag:blogger.com,1999:blog-4738062031052371885.post-90736618825354367212019-05-12T23:41:42.993-07:002019-05-12T23:41:42.993-07:00You write good content Thanks for the thoughts and...You write good content Thanks for the thoughts and ideas.<br />ivf doctors delhi indiahttps://www.babyjoyivf.com/ivf-doctors-delhi/noreply@blogger.comtag:blogger.com,1999:blog-4738062031052371885.post-20521566025062822452019-03-31T16:13:39.783-07:002019-03-31T16:13:39.783-07:00Thank you so much for this information!
I would ...Thank you so much for this information! <br /><br />I would like to add, because I don't see it mentioned here, that lipedema fat can be largely in the lower tummy between the navel & pubic bone. Mine is there + my thighs + just the tiniest bit starting in my hips/lower legs + my upper arms. By appearance, my tummy is stage 2-3, thighs 1-2, arms 2, everything else 1.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4738062031052371885.post-57659217018660829162019-03-28T22:55:51.340-07:002019-03-28T22:55:51.340-07:00I have nothing but wonderful things to say about t...I have nothing but wonderful things to say about this product! I am currently a first year medical school student, and one of the first clinical skills that I had to learn was how to take an accurate blood pressure. <br /><br /><a href="https://www.amazon.com/Santamedical-Adult-Deluxe-Aneroid-Sphygmomanometer/dp/B00ACBKNS6" rel="nofollow">Adult Deluxe Aneroid Sphygmomanometer</a>Harish Kumarhttps://www.blogger.com/profile/01453582554007504213noreply@blogger.comtag:blogger.com,1999:blog-4738062031052371885.post-32290166536221966362019-03-27T18:46:39.604-07:002019-03-27T18:46:39.604-07:00I just read your blog for the first time. I just s...I just read your blog for the first time. I just started with a therapist for the MLD. And I learned I have stage 4. I’m 63 and I have exercised most of my life and just got bigger. At least it’s nice to know about this illness and there are some things I can do for help. It’s a positive to just know. I love your writing, and your info on education. This can help so many. Blessings to you dear lady. .......FYI, I worked for many years as a clinical social worker with mom’s and babies. I loved that job!!Carolyn Eardleynoreply@blogger.comtag:blogger.com,1999:blog-4738062031052371885.post-68405783749237558202018-12-29T10:12:07.323-08:002018-12-29T10:12:07.323-08:00Italian hospitals have also investigated inflatabl... Italian hospitals have also investigated inflatable binders: Int J Gynaecol Obstet. 2013 Jan;120(1):78-81. doi: 10.1016/j.ijgo.2012.07.025. Epub 2012 Oct 16.<br />An inflatable ergonomic 3-chamber fundal pressure belt to assist vaginal delivery.<br />Acanfora L, Rampon M, Filippeschi M, Marchi M, Montisci M, Viel G, Cosmi E.<br />I'm the first Author and "THE BELT HAS A CONTROLLED, ERGONOMIC AND MEASURED PRESSURE TO AVOID RISKS AT DELIVERY , RESULTS "Compared with the control group, women in the study group experienced a lower incidence of perineal and cervical lacerations (P<0.001); reduced use of the Kristeller maneuver (P<0.001); shorter duration of the second stage of labor (P<0.001); less psychologic and physical fatigue (P<0.001); fewer maternal requests for cesarean delivery during labor (P<0.001); fewer vacuum extractions (P<0.01); and fewer cesarean deliveries (P<0.02). No neonatal intensive care unit admissions were recorded in the study group versus 7 in the control group (P<0.012).Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4738062031052371885.post-70655399441606306332018-12-15T21:45:58.388-08:002018-12-15T21:45:58.388-08:00What an amazing lady! She embodied class, intellig...What an amazing lady! She embodied class, intelligence, bravery, integrity and a charm and strength seldom found even in today's world. She left behind a legacy to respect and admire for years to come.Laverne Siklasnoreply@blogger.comtag:blogger.com,1999:blog-4738062031052371885.post-15127210406889559892018-11-20T13:03:21.088-08:002018-11-20T13:03:21.088-08:00My experience was similar to yours and I am in Ita...My experience was similar to yours and I am in Italy. I delivered in 2007. Never wanted to have another child due to the experience. Found out recently it is not authorized for use and hasn't been for a while...yet they still use it in hospitals. Insane! Why can't they just follow the rules.JANhttps://www.blogger.com/profile/01536758437276791156noreply@blogger.comtag:blogger.com,1999:blog-4738062031052371885.post-85688655703747867262018-11-20T12:56:02.355-08:002018-11-20T12:56:02.355-08:00I had fundal pressure applied during my delivery i...I had fundal pressure applied during my delivery in 2007 in Italy. I did have an epidural. My son's shoulder was stuck and his collar bone broken during delivery. First they cut me twice to make room then the nurse applied the pressure without warning. I didn't take a breath prior and once the pressure was applied I almost passed out due to lack of air. I was not able to take a breath and started to black out...scared I grabbed the nurse and threw him off me almost tearing out my IV. He was coming back to apply pressure again and I told him not to touch me...I would push on my own! I pushed on my own as hard as I could and he was born. Three to four hours afterwards I had an emergency. I could not breath well and felt like a weight was on my chest. The hospital took blood gas readings and hooked me up to machines. Their explanation was I lost too much blood and wasn't getting enough oxygen. Now after reading about the fundal pressure risks I truely believe that was the cause or a contributing factor of my emergency. In my case. I asked to sit up so I could push better. They ignored my requests and did the fundal pressure. I am shocked that this technique is being used so quickly. It clearly should be a very last resort not a go-to skill.JANhttps://www.blogger.com/profile/01536758437276791156noreply@blogger.comtag:blogger.com,1999:blog-4738062031052371885.post-57714069998035817512018-11-11T16:46:12.614-08:002018-11-11T16:46:12.614-08:00Thank you for sharing that. The study on keto for ...Thank you for sharing that. The study on keto for lymphedema doesn't mean that much because although there are similarities, lipedema and lymphedema are NOT the same. The anecdotal stories don't mean much either. I've heard similar things about other diets. While I respect people's experiences, I won't take KD seriously until there's good research that shows long-term results. Well-Rounded Mamahttps://www.blogger.com/profile/04129621631406155340noreply@blogger.comtag:blogger.com,1999:blog-4738062031052371885.post-55639124478212565742018-11-08T03:19:14.822-08:002018-11-08T03:19:14.822-08:00There has been one published study by a professor ...There has been one published study by a professor of Occupational Therapy in the US that shows lymphedema improvement with KD. Since there is often an overlap with lipedema this has been the basis for using the diet with lipedema. There are lips ladies who have achieved normal weight and normal shape who have been on KD for two years.<br />Brendahttps://www.blogger.com/profile/16230959581254269293noreply@blogger.com